Cystinosis Network Europe

International Conference 2020, Dublin

20th March 2020: Statement from the conference organisers

Following much consideration, Cystinosis Network Europe (CNE) and Cystinosis Ireland have decided to cancel the International Cystinosis Conference planned for Dublin in July 2020 due to the ongoing situation with COVID-19. 

Our community is a vulnerable one and we have taken this decision to protect our loved ones, our extended families, or clinicians and researchers. 

We are planning to run a Virtual International Cystinosis Conference online on Saturday 11th July 2020.  Our plans are to make this virtual conference as widely and easily accessible as possible.  We will soon survey families, clinicians and researchers about the topics and content you would like to have presented.  More details will follow and we will keep you updated regularly.

We know this is a difficult time for our community and we are all concerned about our loved ones.  You will all be well aware by now of the protections you can take with careful hand washing and social distancing to reduce the risks. 

We look forward to virtually welcoming you to the International Cystinosis Conference hosted by Cystinosis Ireland on behalf of CNE on 11th July.  

Please contact denise.dunne@cystinosis-europe.eu if you have any queries about the cancellation or the virtual conference.