The Annual Dublin Cystinosis Workshop is an interactive forum for researchers to share new knowledge, spark new ideas and explore new research approaches aimed at better understanding and treating the ultra-rare disease of cystinosis.
You can find more details here.
Cystinosis Ireland is one of the main patient organisations in Europe driving research into this rare disease.
Find out more about our research funding schemes and the areas of research that we are interested in here.
Cystinosis Ireland is committed to promoting real engagement of the public and patients/families living with cystinosis in the research that we support.
Find out what Public and Patient Involvement (PPI) really is and how we can help you here.