Biography

Medical School at the Christian-Albrecht-Universität, Kiel, Germany. Medical Degree of the University of Kiel and of the University of Vienna, Austria. Internship in Pediatrics at the Johannes- Gutenberg University, Mainz, Germany.  Habilitation in Pediatric Nephrology. Since 2002 Associate Professor of Pediatrics, Johannes-Gutenberg University Mainz, Germany. Board examination in Pediatric Nephrology in 2011. In 2012 establishing an Interdisciplinary Cystinosis Clinic in cooperation with the German patient support group in Traunstein. In 2019 long-term implementation of the Interdisciplinary Cystinosis Clinic in Rosenheim/Bavaria. In 2015 establishing the German Cystinosis Foundation: Major Projects:  „Save “– A telemedical concept to improve clinical care and treatment in patients with Cystinosis. “supported by the Bavarian Health Ministry (cooperation Goethe-University, Frankfurt) and the Pilot- Project: Establishing a genetic Newborn-Screening for Cystinosis and SMA in Germany, founded through the Cystinosis Foundation, Dietmar Hopp Foundation and CRN, USA.