Cystinosis Ireland was founded in 2003 by those living with cystinosis and their families. The organisation continues to be led by people with personal experience of living with cystinosis.
Our goals remain the same since our foundation – to fund research, raise awareness and provide support.
Cystinosis Ireland is one of the main patient organisations in Europe driving research into this rare disease. Since its establishment in 2003, Cystinosis Ireland has supported research projects focused on all aspects of this disease to the value of €1.9 million either through direct funding or as a co-funding partner with Ireland’s national health research funding agency, the Health Research Board.
Cystinosis Research
If you’d like to find out more about the disease cystinosis and the research efforts that are underway worldwide aimed at understanding, treating and seeking a cure for this ultra rare disease, click here.
Cystinosis Ireland is open to receiving applications in all areas of cystinosis research.
However, there are some areas of research that are of particular interest to us. To find out more, click here.
Cystinosis Research News and Events
Cystinosis Ireland and CRN Co-fund Male Infertility Study
We are pleased to announce a collaboration between the Cystinosis Research Network (CRN) and Cystinosis Ireland to fund a male infertility in cystinosis study … read more
Dr Jennifer Hollywood wins the 2020 Professor Roz Anderson Memorial Prize at the 6th Annual Dublin Cystinosis Workshop 2020
Cystinosis Ireland is proud to announce that Dr Jennifer Hollywood won this year’s Professor Roz Anderson Memorial Prize which was awarded for the best short communication presented at the workshop … read more
Virtual 6th Annual Dublin Cystinosis Workshop 2020
Cystinosis Ireland was delighted to host the 6th Annual Dublin Cystinosis Workshop 2020 virtually on 16 July 2020.
The Dublin Cystinosis Workshop is a key annual event focused on cystinosis research internationally.
New cystinosis research publication from Dr Jennifer Hollywood and team at the University of Auckland
Congratulations to Dr Jennifer Hollywood and her research colleagues at the University of Auckland in NZ on their recent publication entitled: Use of Human Induced Pluripotent Stem Cells and Kidney Organoids To Develop a Cysteamine/mTOR Inhibition Combination Therapy for Cystinosis. Read more …
Funding Opportunities for Researchers
Cystinosis Ireland is open to receiving research applications in all areas of cystinosis research.
Click HERE to read more about some of the research areas that are of particular interest.
Research projects funded by Cystinosis Ireland
Find out more about the research Cystinosis Ireland has funded and/or co-funded … here
Delivering HOPE through success
We’ve funded research into cystinosis to the value of almost €2 million in Ireland and worldwide.
Click here to add your own text
Click here to add your own text