Cystinosis Ireland is an All-Ireland patient-led charity with a successful track record investing in research into the ultra-rare disease, cystinosis. We play a cutting-edge role nationally and internationally in ensuring research has impact for patients and are one of the main funders of cystinosis research world-wide. We maintain strong international networks among researchers, clinicians and patient organisations. We support families and those living with cystinosis in Ireland.

For more details, click here or email [email protected].