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27/02/2023

Bill’s Marathon Challenge!

Hello all, my name is Bill Leacy, and I will run in the Los Angeles Marathon on 19 March in honour of my friend, Darren Barnes. Darren and his brother Graham both suffered from the effects of cystinosis until they both passed recently. This will be the 6th continent of 7 in a marathon challenge where I typically raise money for a charity for each race. I want to bring more general awareness to cystinosis and try to contribute towards the battle against it. This is a particular honour for me as Darren was such a truly great person who lived with positivity and battled to the end.

To contribute towards my fundraising, please click here, and use Bill’s Marathon in the text box at the bottom.

Thank you.

News, Research 28/11/2024

University of Auckland Chancellor's Circle induction

Hello all, my name is Bill Leacy, and I will run in the Los Angeles Marathon on 19 March in honour of my friend, Darren Barnes.

News, Research 19/11/2024

Article: Patient journey in cystinosis: focus on non-adherence and disease management

Hello all, my name is Bill Leacy, and I will run in the Los Angeles Marathon on 19 March in honour of my friend, Darren Barnes.

News 30/10/2024

Novartis Community Statement October 2024

Hello all, my name is Bill Leacy, and I will run in the Los Angeles Marathon on 19 March in honour of my friend, Darren Barnes.