We invest in global cutting-edge Cystinosis research, providing funding and support through collaboration with DNA and Stem Cell experts. This inclusive approach positions us as the best partner in the global fight for a cure, cultivating strong ties with our peers. We are open for business in advancing groundbreaking solutions.
Funding
Opportunities
Cystinosis Ireland is one of the main patient organisations in Europe driving research into this rare disease.
Since its establishment in 2003, Cystinosis Ireland has supported research projects focused on all aspects of this disease to the value of €3.1 million either through direct funding or as a co-funding partner with Ireland’s national health research funding agency, the Health Research Board Cystinosis Ireland funds research in laboratories worldwide through two main schemes, learn more on Cystinosis Seedcorn Funding Scheme and the HRCI/HRB Joint Funding Scheme.
Funded Research
Click below to see research projects that have been directly funded by Cystinosis Ireland either as a co-funding partner with Ireland’s national health research funding agency, the Health Research Board, or with one of our sister organisations, our through our Seedcorn and Standalone funding schemes.
Past Funded Research
Previously funded research projects we have provided €3.1 million to. Either through direct funding or as a co-funding partner with Ireland’s national health research funding agency, the Health Research Board.
Other Research
A selection of Cystinosis related research going on around the world. This research has been gathered by our research team but we have not directly funded it. It is not a complete list and will be added to over time.
Public & Patient
Involvement
Cystinosis Ireland and the HRB are committed to promoting real engagement of the public and patients in the research that we support.
‘Public’ means everyone in Ireland who has an interest in health and social care as a public service including potential users of services.
‘Patient’ means people who use services such as patients, service users, clients or their carers.
‘Involvement’ means the active involvement between people who use services, carers, the general public and researchers.
Dublin Cystinosis Workshop
The Annual Dublin Cystinosis Workshop is an interactive forum for researchers to share new knowledge, spark new ideas and explore new research approaches aimed at better understanding and treating the ultra-rare disease of Cystinosis.
