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  • News
30/10/2024

Budget 2025 changes for carers

Budget 2025 was published in October 2024 and has some changes for those caring for family members. You can find a snapshot of the updates here, and a more detailed breakdown of the information here.

Research, News 16/09/2026

Cystinosis Ireland announces research valued at €200,000 co-funded with Health Research Board 2026

24/07/2026

CYStem clinical trial community update

Research, News 26/01/2026

Research Update: Development Of The First Human Cellular Model To Study Cystinosis Myopathy