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30/10/2024

Budget 2025 changes for carers

Budget 2025 was published in October 2024 and has some changes for those caring for family members. You can find a snapshot of the updates here, and a more detailed breakdown of the information here.

News, Events 10/04/2025

Cystinosis Ireland to host 2026 international conference

News, Research 04/04/2025

Now enrolling: Phase I/II CYStem clinical trial

News 03/03/2025

Rare Diseases Day 2025