- Fundraising
- Events
Super Mario Powers: A Rare 10km for a Cystinosis Cure
A Rare 10k!
It is so incredibly important to us to find a cure for cystinosis. We want to raise vital funds and bring some fun at the same time so Mario, Luigi & Yoshi (AKA Jack, Dylan & Rach) will be walking 10km, on Laytown beach, to show our rare. (There’s something you don’t see every day!) We promise to share lots of photos afterwards. It will be on or around Halloween.
We would really appreciate your support and any amount helps, so please give what you can. If you would like to donate to the Super Mario Super Gang’s challenge, just click this link and add “Super Mario” in the fundraiser field.
If you have any ideas for your own Rare 10k, get in touch! mail@cystinosis.ie
University of Auckland Chancellor's Circle induction
It is so incredibly important to us to find a cure for cystinosis. We want to raise vital funds and bring some fun at the same time so Mario, Luigi & Yoshi
Article: Patient journey in cystinosis: focus on non-adherence and disease management
It is so incredibly important to us to find a cure for cystinosis. We want to raise vital funds and bring some fun at the same time so Mario, Luigi & Yoshi
Novartis Community Statement October 2024
It is so incredibly important to us to find a cure for cystinosis. We want to raise vital funds and bring some fun at the same time so Mario, Luigi & Yoshi