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25/06/2024

Tracey's challenges for cystinosis!

Tracey’s Challenges are now Completed!

Thank you so much to everyone who generously donated to my 6-month Challenge that I undertook to help raise awareness of cystinosis but most importantly to help raise funds that will contribute to the vital research into finding a cure for cystinosis.

I loved each event, enjoyed the training and even more so enjoyed seeing beautiful parts of our country. I'm delighted and relieved my body just about survived. It ended with a high on Valentia Island, where we got to swim across from the mainland to the Island, cycle around the Island, with beautiful views of the Skelligs, trying not to get distracted from  racing ending with a hard run and a category win 🥇.

It was all worth it! Thanks so much to each and everyone who so kindly and generously donated, it means a lot.

Challenges:

April: Ride Dingle Cycle, Co. Kerry

May: Cycle the Lakes, Blessington, Co. Wicklow

June: The Edge Sports Blackwater Triathlon, Fermoy, Co. Cork

July: Kilkenny Triathlon, Co. Kilkenny

August: Swim Ireland Greystones Open Water Swim, Co. Wicklow

September: Hardman Valentia Island Triathlon, Co. Kerry

Cystinosis is an ultra-rare disease, so rare it affects 1 in 100,000 to 200,000 newborns worldwide. On the island of Ireland 23 people live with cystinosis. To date there is no cure for this illness. Cystinosis Ireland invests in research to improve the understanding of the condition, and to improve therapies and treatments, with the ultimate goal of finding a cure.

Research, News 19/09/2024

Cystinosis Ireland announces research valued at €600,000 co-funded with Health Research Board

Support Tracey in taking on six for six in 2024!

News, Fundraising 25/06/2024

Tracey's challenges for cystinosis!

Support Tracey in taking on six for six in 2024!

Workshops, News 13/05/2024

Prof Roz Anderson Memorial Prize winnner 2024

Support Tracey in taking on six for six in 2024!