Cystinosis is an ultra-rare disease, so rare it affects 1 in 100,000 to 200,000 newborns worldwide. On the island of Ireland 23 people live with cystinosis. To date there is no cure for this illness. It is so incredibly important to us to find a cure for cystinosis. Tracey McCauley, our Research Manager, has taken on a series of 6 challenges over 6 months to help raise awareness of cystinosis but most importantly to help raise funds that will contribute to the vital research into finding a cure for cystinosis.

 Challenges

April: Ride Dingle Cycle, Co. Kerry

May: Cycle the Lakes, Blessington, Co. Wicklow

June: The Edge Sports Blackwater Triathlon, Fermoy, Co. Cork

July: Kilkenny Triathlon, Co. Kilkenny

August: Swim Ireland Greystones Open Water Swim, Co. Wicklow

September: Hardman Valentia Island Triathlon, Co. Kerry

If you would like to support Tracey, by donating anything at all, please use this link and type “Tracey’s 6-month challenge” in the text box. Every penny will go straight to Cystinosis Ireland to invest in research and provide supports to patients and their families.

THANK YOU!