1 day – 8 languages – 15 speakers – 20 time zones – 49 countries – 900 registered attendees! Thank you to all who joined us. The Virtual International Cystinosis Conference went online on Saturday 25th April 2020 – a first for the global cystinosis community
#virtualcystinosis2020
We would like your feedback – click here for details
For the conference agenda and speaker details click here.
We provide support and resources to families with cystinosis, from the early stages of diagnosis through to adulthood. We also have information for healthcare and other professionals supporting people with cystinosis.
Most research into cystinosis is funded by patient groups like Cystinosis Ireland. Find our more about the Dublin Cystinosis Workshop, the projects we support and how to access our research funding opportunities here.
All of our public fundraising is spent on research into treatments and potential cures for cystinosis. Support a fundraiser, or start your own – we can help and guide you through whatever new idea or tried and trusted event you plan.
Cystinosis Ireland holds the chair of Cystinosis Network Europe and is co-ordinating the 2020 Virtual CNE International Conference and the Worldwide Cystinosis Community Advisory Board.
Latest Bulletin
We’ve funded research into cystinosis to the value of almost €2 million in Ireland and worldwide.
Virtual 6th Annual Dublin Cystinosis Workshop 2020
/0 Comments/in General News, Latest Bulletin, Research, Workshop, Workshop 2020 /by cystinosisirelandThe 6th Annual Dublin Cystinosis Workshop 2020 will be held on line on 16 July 2020
1145-1900 Irish local time
The Dublin Cystinosis Workshop is a key annual event focused on cystinosis research internationally.
After the success of the International Cystinosis Family Conference 2020 on 25 April 2020, planning is now underway to organise the 6th Annual Dublin Cystinosis Workshop 2020 for the 16 July 2020.
Check back here with us for further details as we work on preparing an exciting scientific agenda for the workshop.
Cystinosis Ireland have launched a call for abstracts inviting researchers of any aspect of cystinosis research to submit abstracts for consideration by the scientific committee to given an oral presentation of their latest research findings at the upcoming Virtual 6th Annual Dublin Cystinosis Workshop 2020.
The deadline for abstract submissions is Friday 12th June 2020.