Research. Awareness. Support.
Latest Bulletin
Information
We provide support and resources to families with cystinosis, from the early stages of diagnosis through to adulthood.
Research
Most research into cystinosis is funded by patient groups like Cystinosis Ireland.
Fundraising
All of our public fundraising is spent on research into treatments and potential cures for cystinosis. Support a fundraiser, or start your own!
International Work
Learn about international conferences and collaborative projects we are working on!
Delivering HOPE through success
We’ve funded research into cystinosis to the value of almost €2 million in Ireland and worldwide.
The count down is on! CNE International Cystinosis Conference, Dublin July 2020
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