7th Annual Dublin Cystinosis Workshop – 20th May, 2021

The 7th Annual Dublin Cystinosis Workshop took place online on 20th May 2021. Click here for speaker details and the agenda.

Research | Awareness | Support

Information

We provide support and resources to families with cystinosis, from the early stages of diagnosis through to adulthood. We also have information for healthcare and other professionals supporting people with cystinosis as well as for researchers focused on a diverse range of cystinosis research topics.

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Research

Most research into cystinosis is funded by patient groups like Cystinosis Ireland. Find our more about the Annual Dublin Cystinosis Workshop, the research projects we support and how to access our research funding opportunities here.

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Fundraising

All of our public fundraising is spent on research into treatments and potential cures for cystinosis. Support a fundraiser, or start your own – we can help and guide you through whatever new idea or tried and trusted event you plan.

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International

Cystinosis Ireland holds the chair of Cystinosis Network Europe and the secretariat of the Worldwide Cystinosis Community Advisory Board. We were proud to host the 2020 Virtual CNE International Conference.

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