Research | Awareness | Support
Latest Bulletin
Information
We provide support and resources to families with cystinosis, from the early stages of diagnosis through to adulthood. We also have information for healthcare and other professionals supporting people with cystinosis.
Research
Most research into cystinosis is funded by patient groups like Cystinosis Ireland. Find our more about the Dublin Cystinosis Workshop, the projects we support and how to access our research funding opportunities here.
Fundraising
All of our public fundraising is spent on research into treatments and potential cures for cystinosis. Support a fundraiser, or start your own – we can help and guide you through whatever new idea or tried and trusted event you plan.
International
Cystinosis Ireland holds the chair of Cystinosis Network Europe and is co-ordinating the 2020 CNE International Conference and the Worldwide Cystinosis Community Advisory Board.
Delivering HOPE through success
We’ve funded research into cystinosis to the value of almost €2 million in Ireland and worldwide.
CNE International Cystinosis Conference 2020 – Coronavirus notice
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