We provide support and resources to families with cystinosis, from the early stages of diagnosis through to adulthood. We also have information for healthcare and other professionals supporting people with cystinosis.
Most research into cystinosis is funded by patient groups like Cystinosis Ireland. Find our more about the Dublin Cystinosis Workshop, the projects we support and how to access our research funding opportunities here.
All of our public fundraising is spent on research into treatments and potential cures for cystinosis. Support a fundraiser, or start your own – we can help and guide you through whatever new idea or tried and trusted event you plan.