The International Cystinosis Conference went online on Saturday 25th April!

1 day – 8 languages – 15 speakers – 20 time zones – 49 countries – 900 registered attendees! Thank you to all who joined us. The Virtual International Cystinosis Conference went online on Saturday 25th April 2020 – a first for the global cystinosis community

#virtualcystinosis2020

You can see some of the feedback from attendees here.

For the conference agenda and speaker details click here.

Research | Awareness | Support

Information

We provide support and resources to families with cystinosis, from the early stages of diagnosis through to adulthood. We also have information for healthcare and other professionals supporting people with cystinosis.

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Research

Most research into cystinosis is funded by patient groups like Cystinosis Ireland. Find our more about the Dublin Cystinosis Workshop, the projects we support and how to access our research funding opportunities here.

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Fundraising

All of our public fundraising is spent on research into treatments and potential cures for cystinosis. Support a fundraiser, or start your own – we can help and guide you through whatever new idea or tried and trusted event you plan.

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International

Cystinosis Ireland holds the chair of Cystinosis Network Europe and is co-ordinating the 2020 Virtual CNE International Conference and the Worldwide Cystinosis Community Advisory Board.

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