Cystinosis Ireland is one of the main patient organisations in Europe driving research into this rare disease. 

Our two main funding schemes are through our Seedcorn Funding Programme and the Health Research Board Joint Funding Scheme. Find out more about each and how to apply below.

Cystinosis Ireland’s Seedcorn Funding Programme aims to provide researchers with the opportunity to generate solid preliminary data which would contribute to a sustainable, longer-term application for funding either with Cystinosis Ireland and the HRB JFS and/or our sister organisations, or indeed, any external funding body.

The maximum funding available for each research project is €10,000 for a duration of up to 12 months, though this may be exceeded in exceptional circumstances.

This is a running call and application forms can be found here.

Please do get in touch prior to applying to talk further about your research idea for a Seedcorn Funding scheme programme.

For more information about the programme, and for details on how to apply for funding, please contact

You can find the Seedcorn funding application form here and the review criteria here.

Cystinosis Ireland participates in this scheme which runs every 2 years for funding of up to €300,000 for a duration of 12 to 36 months. The 2023/2024 scheme is now closed.

The Health Research Board (HRB) is the lead agency in Ireland supporting research linked to health and social care.  Cystinosis Ireland participates in the HRB Joint Funding Scheme in which patient organisations, such as Cystinosis Ireland, and the HRB share the cost of funding high quality research activities of particular relevance to our community.

Funding is available to researchers worldwide.

If you are interested in applying for future rounds, please email:

Public & Patient Involvement

Cystinosis Ireland is committed to promoting real engagement of the public and patients in the research that we support.

  • ‘Public’ means everyone in Ireland who has an interest in health and social care as a public service including potential users of services.

  • ‘Patient’ means people who use services such as patients, service users, clients or their carers.

  • ‘Involvement’ means the active involvement between people who use services, carers, the general public and researchers.