Cystinosis Ireland is delighted to announce the joint funding of two research projects, valued at €600,000, in conjunction with the Health Research Board (HRB), which is Ireland's primary health research body funded by the Irish Government, as part of the HRB Joint Funding Scheme.

Support Tracey in taking on six for six in 2024!

Cystinosis Ireland is delighted to announce the winner of the 10th Annual Dublin Cystinosis Workshop, Professor Roz Anderson Memorial Awardto Sante Princiero Berlingerio of KU Leuven, Belgium presenting his work “Targeting oxidative stress-driven lipid peroxidation improves podocyte dysfunction in cystinosis”.

Cystinosis Ireland, a member of the Irish Donor Network, warmly welcomes the passage of the Human Tissue Bill 2022 through the Dail. The Bill will now go to the Seanad for consideration. The passage of the Human Tissue Bill 2022 will allow for better regulation of human tissue use in Ireland and provides a comprehensive legal framework for the donation of organs for transplantation, including introducing “soft opt-out”.

Cystinosis Ireland marks 20 years of supporting the Irish cystinosis community and investing €3million in research funding

Today (29 December 2022) the HSE published the preliminary organ transplant figures for 2022 in Ireland. 

Cystinosis Ireland warmly welcomes the Cabinet approval of the Human Tissue Bill which will pave the way for soft-opt out organ donation.