News & Events

Tracey's challenges for cystinosis!
Support Tracey in taking on six for six in 2024!

Bill’s Marathon Challenge!
Hello all, my name is Bill Leacy, and I will run in the Los Angeles Marathon on 19 March in honour of my friend, Darren Barnes.

Cathal’s Omagh Half Marathon!
Cathal Judge is taking on the challenge of the Omagh half marathon in April 2022.

Jayden & Melody walk Hadrian’s Wall!
Jayden (8) and Melody (7) are part of a rag taggle group of 13 who will be walking 85 miles, the length of Hadrian’s Wall, to raise funds for Cystinosis Ireland.

Claire, Donal and Brin’s walk to Temple Street
As many of you know our beautiful baby boy Brín was diagnosed with a very very rare disease called Cystinosis just last August.

Super Mario Powers: A Rare 10km for a Cystinosis Cure
It is so incredibly important to us to find a cure for cystinosis. We want to raise vital funds and bring some fun at the same time so Mario, Luigi & Yoshi